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Challenges of empowering educable women with intellectual disability in sexual and reproductive health: qualitative study
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Maryam Farmahini Farahani1    , Ladan Fatahmoghadam2 , Keshvar Samadaee Gelehkolaee3 , Fovziye Sanaati4 , Mehrandokht Nekavand5 |
1- Assistant Professor, Department of Midwifery, TeMS.C., Islamic Azad University, Tehran, Iran
2- Department of Psychiatric Nursing, TeMS.C., Islamic Azad University, Tehran, Iran
3- Assistant Professor, Sexual and Reproductive Health Research Center, Department of Reproductive Health and Midwifery, Faculty of Nursing and Midwifery, Mazandaran University of Medical Sciences, Sari, Iran
4- Assistant Professor, Miandoab School of Medical Sciences, Urmia University of Medical Sciences, Iran
5- Assistant Professor, Department of Midwifery, TeMS.C., Islamic Azad University, Tehran, Iran , nekavand.m@gmail.com |
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Abstract: (366 Views) |
Background: Women with intellectual disabilities often face numerous challenges. Acknowledging the significance of the issue of sexual and reproductive health and the unique complexities faced by this population, this study aimed to identify the challenges in empowering educable women with intellectual disability in the matters of sexual and reproductive health.
Materials and methods: This qualitative study used a content analysis approach in 2024. Data were collected through purposive sampling and individual, in-depth, and semi-structured interviews with 24 participants, including home caregivers, trainers, and experts in the field of reproductive and sexual health of women with intellectual disabilities, and analyzed using a structured content analysis method.
Results: Qualitative data analysis resulted in the extraction of 15 subcategories, 6 main categories, and the formation of 3 themes titled "isolation," "Instability of Independence," and "economic constraints".
Conclusion: Research findings show that most families with children with intellectual disabilities have not adapted to the phenomenon of their children's disabilities. Additionally, the significant societal stigma, prohibitive healthcare costs, and insufficient government support have rendered families feeling powerless in empowering their children, reinforcing their dependency. Therefore, educating parents about recognizing and accepting their emotional, psychological, and reproductive needs, along with government support in providing sexual and reproductive health services and increasing social acceptance, will enhance their capabilities in the area of reproductive and sexual health.
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| Keywords: Sexual health, Reproductive health, Intellectual disability, Empowerment |
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Full-Text [PDF 1088 kb]
(70 Downloads)
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Semi-pilot: Qualitative |
Subject:
Midwifery
Received: 2025/07/12 | Accepted: 2025/10/26 | Published: 2026/07/1
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1. Hilt RJ, Nussbaum AM, eds. DSM-5-TR® Pocket Guide for Child and Adolescent Mental Health. Washington, D.C., USA: American Psychiatric Pub; 2025. [ DOI:10.1176/appi.books.9798894551012] 2. Tromans S, Alexander R, Gangadharan SK, Kapugama C, Bhaumik S, eds. Psychiatry of Intellectual Disability Across Cultures. Oxford, UK: Oxford University Press; 2023. [ DOI:10.1093/med/9780198857600.001.0001] 3. Singh Shrestha P, Ishak A, Maskey U, Neupane P, Sarwar S, Desai S, et al. Challenges in Providing Reproductive and Gynecologic Care to Women With Intellectual Disabilities: A Review of Existing Literature. J Family Reprod Health 2022;16:9-15. [ DOI:10.18502/jfrh.v16i1.8589] 4. Singh G, Mitra P, Narayan S. Sexual Abuse in Adults with Intellectual Disability: A Mini Review. Glob J Intellect Dev Disabil 2023; 12: 555828. [ DOI:10.19080/GJIDD.2023.12.555828] 5. Frawley P, O'Shea A. Nothing about us without us': sex education by and for people with intellectual disability in Australia. Sex Education 2020;20:413-24. [ DOI:10.1080/14681811.2019.1668759] 6. Daniels JN. Already doing it: intellectual disability and sexual agency. Sex Education 2016;16:721-3. [ DOI:10.1080/14681811.2016.1165441] 7. Starke M, Larsson A, Punzi E. People with intellectual disability and their risk of exposure to violence: Identification and prevention - a literature review. J Intellect Disabil 2025;29:760-83. [ DOI:10.1177/17446295241252472] 8. Carter A, Strnadová I, Watfern C, Pebdani R, Bateson D, Loblinzk J, et al. The sexual and reproductive health and rights of young people with intellectual disability: A scoping review. Sexuality Research and Social Policy 2021:1-19. [ DOI:10.1007/s13178-021-00549-y] 9. Saini R, Ahmad W, Nazli. Awareness among parents of individuals with intellectual disability about sexual health education. Ind Psychiatry J 2021;30:224-29. [ DOI:10.4103/ipj.ipj_74_21] 10. Goli S, Noroozi M, Salehi M. Sexual Health Challenges of the Iranian Intellectually Disabled Adolescent Girls: a Qualitative Study. Int J Pediatr 2022;10:15630-9. 11. Taghizadeh Z, Ebadi A, Farmahini Farahani MJS, Disability. Marriage challenges of women with intellectual disability in Iran: a qualitative study. Sexuality and Disability 2020;38:31-39. [ DOI:10.1007/s11195-019-09615-1] 12. Bhattarai S, Saugat PK, Kakchapati S, Poudel S, Baral SC, Marston CJm. Barriers and facilitators to sexual and reproductive health rights for Persons with Disability in Nepal: a scoping review. medRxiv 2023.04.19.23288803. [ DOI:10.1101/2023.04.19.23288803] 13. Frawley P. Access to Sexual Rights for all People with Disabilities: The Need to See and Include the Experiences of People with Intellectual Disability. Arch Sex Behav 2023;52:3271-76. [ DOI:10.1007/s10508-023-02577-8] 14. National Welfare Organization. List of Research Priorities of the Welfare Organization. 2022. Available from: https://www.behzisti.ir/news/94375/ 15. Gaglio B, Henton M, Barbeau A, Evans E, Hickam D, Newhouse R, et al. Methodological standards for qualitative and mixed methods patient centered outcomes research. BMJ 2020;371:m4435. [ DOI:10.1136/bmj.m4435] 16. Wildemuth BM, ed. Applications of social research methods to questions in information and library science: Santa Barbara, California: ABC-CLIO; 2016. [ DOI:10.5040/9798400613739] 17. Monaco EAH, Gibbon TC, Bateman DF, eds. Talking about sex: sexuality education for learners with disabilities: Lanham, Maryland, U.S: Rowman & Littlefield; 2018. 18. Alaie P, Hokmabadi Goshuni M. The Lived Experience of Mothers with Children Who Have Mental-Motor Disabilities (An Introduction to the Psychological Challenges of Articles 53 and 56 of Family Protection Law and Young Population). Women in development and politics 2024;22:89-113. [In Persian] 19. Stancliffe RJ, Hall SA. Social inclusion of adults with intellectual and developmental disabilities: Toward belonging. Int Rev Res Dev Disabil. 2023;64:253-306. [ DOI:10.1016/bs.irrdd.2023.06.002] 20. Taghizadeh Z, Farmahini Farahani M, Nourollahpour Shiadeh M, Qaderi K. Caregivers' concerns about the sexual and reproductive health of women with intellectual disability in Iran: a qualitative study. Reprod Health 2024;21:35. [ DOI:10.1186/s12978-024-01765-6] 21. Matin BK, Ballan M, Darabi F, Karyani AK, Soofi M, Soltani S. Sexual health concerns in women with intellectual disabilities: a systematic review in qualitative studies. BMC Public Health 2021;21:1965. [ DOI:10.1186/s12889-021-12027-6] 22. Baker S, The PROUD Consortium, eds. Growing up, sex and relationships: A guide to support parents of young disabled people. Avaiable from: https://contact.org.uk/wp-content/uploads/2021/03/growing_up_parents_new_logo.pdf 23. Rugoho T, Maphosa F. Challenges faced by women with disabilities in accessing sexual and reproductive health in Zimbabwe: The case of Chitungwiza town. Afr J Disabil 2017;6:252. [ DOI:10.4102/ajod.v6i0.252] |
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Farmahini Farahani M, Fatahmoghadam L, Samadaee Gelehkolaee K, Sanaati F, Nekavand M. Challenges of empowering educable women with intellectual disability in sexual and reproductive health: qualitative study. MEDICAL SCIENCES 2026; 36 (2) :224-234 URL: http://tmuj.iautmu.ac.ir/article-1-2391-en.html
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